Tuesday, June 29, 2010

Jake Update 6/28

Have you ever heard of Rhabdomyosarcoma?  Me either.  I got the call about 1:00 pm today and unfortunately for you, my internet wasn't working until now.  My friend Karen text me and asked if she could come over, but I told her a needed some time to let it sink in.  Two minutes later, my friends Angie and Jill showed up at my door and I unloaded, cried, got some much needed hugs and then they changed the subject!  Can I tell you, that brought me right out of my low down, heart breaking funk.  I'm going to have to remember that for next time!

We haven't been in to see the rhabdomyosarcoma doctor yet (Dr. Jennifer Wright).  They tell me it is very rare to have this show up in adults, so the specialists for this cancer are at Primary Children's Hospital (yes, I used to work there!)  I called Dr. Wright's office at 4 pm and she said the the doctor was still collecting all the test results and scans, etc. so she could determine how far along the cancer is and determine a plan of attack.  So, our life is still on hold.

Jake's leg is still very swollen and I am hoping that something will happen very soon to relieve the pressure on his foot and leg.  He still has a "2 thumbs up" attitude (God bless him!).  I think he is still trying to do a few fun things before he is too sick.

On the bright side...I was able to get my windows washed yesterday, Rhett was able to get my 4 wheelers started (He is so amazingly smart!)  I got some flowers planted in my front yard and my peas are ready to eat!

  This morning I was able to get primer on the trim in the hallway downstairs while I listened to some comforting talks by Elder Maxwell.

As I was sobbing on my bed, God told me to trust Him, so that's what I'm going to do.
He told me it was going to be hard...He was right!


Jill Heaps said...

Thankfully, YOU can do HARD things!! :) We love you guys more then you will ever know!!

Anonymous said...

It's okay to be sad, just don't forget to be happy again. We love you and will keep praying for you!!

Carrie said...

You are stronger than you probably realize. We all have your back and are praying for Jake, your family, the doctors, and the miracle of modern medicine. Jake's attitude is awesome! Thanks for the update. I had to go to dictionary.com to learn how to say Rhabdomyosarcoma. We are all about to be experts at it! We're in this together!

fern said...

what a blessing to have close friends like you do- i am glad that they were there for you- ditto on the comments above- i'll talk to you later today, love you

Rose said...

OK, Lori! I promise I will be happy next week! :)

Thanks guys. Carrie, we'll keep our stick on the ice.

Rachel Elison said...

I love you guys!!! Keep smilen!!! We'll keep prayin!