We tried something different this week. We were suppose to do the overnight chemo this week, but in the past 22 weeks, Jake has grown to loath everything about the hospital. We opted to try the long chemo in clinic. We actually started the night before with some hydration. This is Jake's nurse, Karen, accessing his port. The pharmacy sent us some saline and it ran all night, until 5:30. They trained me on how to disconnect the IV, so I did that and we went to the hospital. We had to wait for about 1/2 hour for the nurses to get things started, so there is no sense going in that early. We had to wait for the pharmacy to mix up the chemo, but all in all we were able to leave at about 6:15 p.m. He had to be on IV fluids until 11:00 pm. The nurse trained me how to de-access his port. I was able to get the nurse to start the IV fluids before we left the hospital, so I wouldn't have to push saline and heparin (which makes him throw up every time.). My aim was to keep as much food in him as possible. I didn't even have to push the saline at 11 for him to get nauseous. I was pretty nervous to have to play nurse...but we got through it fine (big sigh). Jake decided he liked it much better. It makes for a long day in clinic, but at least he gets to go home with me.
My bro-in-law, Bob invented some gel that you can use as disinfectant. It sterilizes the area for up to 4 hours. He has some that has moisturizer in it so we can use it for hand disinfectant. It doesn't have that alcohol smell that makes Jake nauseous either, so I am excited to try it.